A 28-year-old male, living with HIV due to vertical transmission, initiated antiretroviral therapy with Tenofovir/lamivudine/efavirenz at Jawaharlal Nehru Institute of Medical Sciences (JNIMS), on 12th September 2005. However, due to lack of knowledge about HIV and need for continuously adhering to treatment, he discontinued treatment on 4th May 2021, expressing treatment burn-out. Action taken: After […]
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Resolved: Stock-Out of reagents for HCV RNA Test at JNIMS & RIMS
Viral load testing for hepatitis C under the national program were suspended at both Regional Institute of Medical Sciences since September 2024 and Jawaharlal Nehru Institute of Medical Sciences since 15 October 2024 due to a stock-out of reagents required for the HCV RNA test. Authorities at Microbiology Department, JNIMS, issued a notice regarding the […]
Initiating HIV treatment: People still needs support
A person of 24 years young male tested HIV positive on October 28, 2024, at the Integrated counselling and Testing centre at the Regional Institute of Medical Sciences in Imphal. The individual requested help to guide through the treatment initiation process. Action taken: The data enumerators provided guidance to the individual in undergoing clinical baseline […]
Re-linking to HIV treatment after 6 years
A young woman of 18 years, living with HIV through vertical transmission, initiated antiretroviral therapy in 2018. She discontinued her treatment just after one month. Over the past six years, she consistently resisted resuming the therapy. Action taken: Multiple counselling sessions by the staff of CoNE, she finally agreed to re-start HIV treatment. On November […]
“Community‐led monitoring of HIV and viral hepatitis services: lessons learned and impacts from India and Indonesia” Journal of the International AIDS Society.
Community-led monitoring (CLM) assesses healthcare services and improves health outcomes. It provides insights about the state of local or national HIV responses, assisting managers and policymakers to improve services under the framework of availability, accessibility, acceptability and quality (AAAQ) [1]. Interest in CLM is growing, with support from the International AIDS Society, the Joint United […]
CLM addressing legal entitlements of people living with HIV
After our CLM findings that 95% of people living with HIV (PLHIV) are not aware of the India HIV/AIDS Act 2017, we organized different sensitization workshops among PLHIV along with the State Ombudsman for HIV which established under the Act. Post these workshops, during August and September 2024, we received four (4) complaints from individuals […]
People who use drugs and CLM assisting completion of care cascade.
During August and September 2024, we identified nine care recipients with a history of drug use who had completed their hepatitis C treatment at Model Treatment Centres of Regional Institute of Medical Sciences (RIMS) and Jawaharlal Nehru Institute of Medical Sciences (JNIMS). They had completed their treatment for hepatitis C more than a year ago […]
Indicators developed by Peduli Hati Bangsa and TREAT Asia’s community-led monitoring in Asia project will be implemented nationwide
Community-led monitoring (CLM) enables communities and care recipients to collect data about healthcare and support services that can help facility managers and providers improve the quality, accessibility, and effectiveness of care. Ultimately, this person-centered approach to healthcare delivery aims to aid governments and other providers tailor existing services to site-specific needs and fill gaps in […]
Successfully assisting for re-treatment of HCV
On 2nd of April 2024, we came across a person who use drugs who had completed his HCV treatment in November 2021with Sofosbuvir 400 mg & daclatasvir 60 mg for 12 weeks. Later he found that the treatment had failed while doing his SVR 12 test. But unfortunately, he was not really bothered about possible […]
Role of peer PWID in completing care and treatment cascade
During April 2024, we came across 4 care recipients who completed their HCV treatment at various timeframes. They all were unaware of the need for doing a SVR 12 test and processes of conducting the said test. Action taken: The care recipients requested CoNE team to help them for SVR test. Their blood samples were […]