During third week of October 2023 various call were received from the community regrading shortage of medicines (DAAs) used for treatment of hepatitis C in the Treatment Centre at Bishnupur district. Some patients coming to access medicine from Bishnupur district hospital were not given monthly doses of the medicines needed. Action taken: The State Nodal […]
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Hepatitis B still is a struggle: one at a time
During October 2023 our data enumerator came across a respondent. He fulfilled all criteria to initiate treatment for hepatitis B (HBV) under the guidelines of the India National Viral Hepatitis Control Program (NVHCP). Unfortunately, he had not initiated his treatment despite being eligible. Action taken: The respondent was provided with basic information on the NVHCP […]
Ripple effect: Ensuring hepatitis C treatment
During November 2023 data collection process, one respondent on hepatitis C (HCV) informed the data enumerator about another one of his friend who is HCV RNA positive. In the same month, two data enumerators visited his residence, upon which he was found bed-ridden after he met an accident. Due to his condition, he was yet […]
Adolescents living with HIV benefiting from educational benefit scheme
Recently Education department, Government of Manipur launched a scheme called “Chengaak Khonghou” where financial aid of 10,000 Rupees is provided to adolescents living with or affected by HIV and undergoing graduation and post-graduation course. During the data collection process, we met several people living with HIV sharing difficulties in maintaining family and children’s education. We […]
Not all are aware of routine viral load monitoring
Even after HIV viral load test become a routine monitoring test in India some are still not aware. During our data collection work, we came across a respondent who didn’t undergo his HIV viral load test even after exceeding one year. During our interaction we understood that he was not aware about the importance of […]
Restoring Right to Education
October 2023: During data collection, a woman living with HIV shared that her daughter who is also living with HIV was denied admission in the hostel of an educational institution because of her HIV positive status. Action taken: The woman filed a complaint on the matter at the Legal Aid Clinic of CoNE seeking legal […]
Ensuring re-treatment for hepatitis C
July 2023: During the data collection process data enumerator came across one person who had failed an earlier treatment of HCV. Due to stock issues of sofosbuvir/velpatasvir regimen his possible re-treatment was deferred. Action taken: A meeting was convened with the State Nodal Officer of the viral hepatitis program for alternative arrangement of the medicine. […]
Initiated HCV treatment: Bridging the Gap
6th December 2023, received messages in social media and data enumerator at Jakarta. The patient had completed diagnosis of hepatitis C but was unable to get the direct-acting antivirals to initiate treatment. Action taken: 13 th December 2023, the data enumerator took appointment at Pengayoman hospital, accompanied patient to the facility and same day treatment […]
Reinitiated on HIV treatment after 5 years
August 2023: During data collection came across one person who had stopped taking ARV since February 2018. She mentioned that she couldn’t afford the monitoring test at private laboratory and during that point of time the staff at ART center would ask for test reports from private laboratory exclusively and that lead to lost to […]
Linked for HCV SVR 12 test
During August, data enumerators met 14 individuals who completed HCV treatment but have not done their SVR test to check for cure due to lack of treatment education or relapse of drug use. Action taken: Explained the importance of SVR test and to check if the treatment has effectively responded or not. All 14 individuals […]