A patient undergoing hepatitis C treatment at RSCM contacted Peduli Hati team and data enumeratorfor assistance with ensuring continuous access to their DAA medication. The patient had recently completed the first month of therapy but experienced difficulty obtaining an online appointment for the next follow-up visit and medication pick-up due to full booking slot. Peduli […]
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Community-led monitoring and Non-Communical disease linkage
A patient with chronic kidney disease from West Java contacted our data enumerator for assistance with hepatitis C treatment. Peduli Hati Team informed the patient and family about free government treatment available at RS Pengayoman Cipinang and explained the requirements, including identification document, registration fee, and complete laboratory results. Our data enumerator and team members […]
Maneuvering stock-out and ensuring continuous access to treatment
A patient reported undergoing hepatitis C treatment at RSUP Fatmawati using the National Health Insurance and the hospital was experiencing stock-out of medication with approximately three months required to re-stock. Peduli Hati Bangsa verified that medicine replenishment requests from RSUP Fatmawati to Ministry of Health were indeed pending, resulting in longer waiting times. Our data […]
HIV peer support is beyond national boundaries
Peduli Hati Bangsa data enumerator was contacted by RS Cipto Mangunkusumo (RSCM), Jakarta to support a person from Sierra Leone who was hospitalized at the hospital with tuberculosis meningitis and stroke. The person was facing significant barriers to accessing antiretroviral therapy due to immigration requirements, absence of family members in Indonesia, and the lack of […]
Facilitating Re-Treatment
During our data collection process and outreach screening camps, we identified three individuals who had completed hepatitis C treatment four years ago through using Sofosbuvir and Daclatasvir for a duration of 12 weeks but had not undergone sustained virologic response (SVR) testing. Following counselling, all three individuals voluntarily consented to SVR testing and were conducted […]
Women living with HIV continues to face stigma and discrimination
On 6 March 2025 legal awareness session on the HIV/AIDS Prevention and Control Act, 2017, conducted at the District Hospital in Thoubal, a widow living with HIV came forward to share ongoing challenges she has been facing regarding her housing and inheritance rights with her in-laws. After listening to her concerns, she was informed about […]
Peer-support- people who use drugs and completing HCV cascade of care.
During January data collection process, two respondents who had completed their HCV treatment two years ago shared they have not undergone the HCV SVR 12 test to confirm their current HCV status due to frequent relapses to drug use. Upon counselling on the importance of the SVR test, both individuals voluntarily agreed to undergo testing. […]
CLM – Moving from siloed disease specific intervention
On March 12, 2025, during data collection process, a dialysis patient, who has been undergoing routine dialysis for the past 13 years and is living with a disability due to a previous accident, was identified as hepatitis C positive. On March 13, 2025, the data enumerator met the person at RS Pengayoman, coinciding with the […]
Stigma and discrimination issue resolved
Through the information dissemination of the India HIV/AIDS Act 2017, we have recorded an increased level of awareness of the act among care recipients. A woman living with HIV, during September, came forward and filed a complaint at CoNE’s Legal AIDS Center about discrimination based on her HIV status by her neighbor. The case was […]
More awareness on India HIV/AIDS Act 2017 allows PLHIV coming forward
Data from our CLM work showed high number of people living with HIV unaware of the India HIV/AIDS Act 2017. Subsequently, CoNE organized different sets of awareness camps on the act in collaboration with relevant government legal departments. Impact of our work is evident with people living with HIV, mostly women, coming forward to share […]
