October 2023: During data collection, a woman living with HIV shared that her daughter who is also living with HIV was denied admission in the hostel of an educational institution because of her HIV positive status. Action taken: The woman filed a complaint on the matter at the Legal Aid Clinic of CoNE seeking legal […]
Tag: advogains
Ensuring re-treatment for hepatitis C
July 2023: During the data collection process data enumerator came across one person who had failed an earlier treatment of HCV. Due to stock issues of sofosbuvir/velpatasvir regimen his possible re-treatment was deferred. Action taken: A meeting was convened with the State Nodal Officer of the viral hepatitis program for alternative arrangement of the medicine. […]
Initiated HCV treatment: Bridging the Gap
6th December 2023, received messages in social media and data enumerator at Jakarta. The patient had completed diagnosis of hepatitis C but was unable to get the direct-acting antivirals to initiate treatment. Action taken: 13 th December 2023, the data enumerator took appointment at Pengayoman hospital, accompanied patient to the facility and same day treatment […]
Reinitiated on HIV treatment after 5 years
August 2023: During data collection came across one person who had stopped taking ARV since February 2018. She mentioned that she couldn’t afford the monitoring test at private laboratory and during that point of time the staff at ART center would ask for test reports from private laboratory exclusively and that lead to lost to […]
Linked for HCV SVR 12 test
During August, data enumerators met 14 individuals who completed HCV treatment but have not done their SVR test to check for cure due to lack of treatment education or relapse of drug use. Action taken: Explained the importance of SVR test and to check if the treatment has effectively responded or not. All 14 individuals […]
Stock-out of HCV DAAs resolved
August 24th 2023: Enumerator reported a stock-out of DAA in Sanglah Hospital, Bali on August 24th. Same day Peduli Hati communicated with Hepatitis Program Officer at the Provincial Health Office. 30th of August: Provincial Health Office communicated to Peduli Hati that Sofosbuvir and Daclatasvir is now available at their warehouse and ready to be distributed […]
Near home: Accessing care and treatment
In April, a patient who was identified during the data collection process with advanced cirrhosis had extreme difficulty initiating and continuing his hepatitis C treatment facility, which was JNIMS in Imphal. Action Taken: In April, after speaking and meeting with the patient’s treatment center, he was transferred to a health facility at Thoubal district where he […]
Successfully completing hepatitis C treatment cascade
During April to June survey period, the interviewer team met a number of people who inject drugs who had already completed their treatment for hepatitis C, but had not undergone virus testing to confirm sustained virologic response (SVR). Action Taken: In between the April to June, 6 people who inject drugs use were successfully referred for […]
Legal support
In June 2023, while conducting a CLM interview, an interviewer met a teenager who had been abandoned by her father after she was born, and was being raised by her mother. Both mother and daughter had been self-reliant, but her mother became unemployed and unable to support their needs. She sought financial assistance from the […]
Obtaining appropriate treatment regimen
In July 2023, interviewers met a woman living with HIV who was on 2nd-line antiretroviral therapy, but was having to use the pediatric formulation of lopinavir/ritonavir due to stock-outs of the adult formulation. This required her to take multiple pills and she became uncertain over the reliability of the medicines. Action Taken: After a phone conversation […]