May 2023, the community groups in Indonesia organized a protest rally against stock-shortage of direct-acting antivirals used for treatment of hepatitis C. During negotiations at the end of the protest, it was agreed that sofosbuvir/velpatasvir will be added to the national formulary to enable procurements of the same through national programs. Since December 2023, sofosbuvir/velpatasvir […]
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Community-led monitoring in action
Community-led monitoring (CLM) has gained momentum in recent years as revitalized and reimagined intervention that mobilizes communities affected by health inequalities to monitor how services are provided and co-create solutions with key partners to improve them. CLM as part of the community-led response is playing a significant role in bridging the “last mile” gaps by […]
Having national program doesn’t mean people will be aware
During the data collection in during December 2023, we identified a person who have confirmed HCV RNA test result but have not initiated his HCV treatment. The reason he cited was because he was unaware of the services available under the national viral hepatitis control program or any further information. Action Taken: Staff from CoNE […]
Care recipient responses leading to health facility suggestion box
Responses from care recipients at Labuang Baji Regional General Hospital (South Sulawesi, Indonesia) indicated that 57% of the care recipients were not aware suggestion box and 40% mentioned there is no suggestion box at the facility. Action taken: Discussions were held with the facility manager and head of the clinic to provide a suggestion box. […]
Enabling hepatitis C treatment using insurance
During data collection, data enumerators, also engages care recipients on other areas of healthcare such as challenges in health insurance, including overdue payment of premiums which may hinder access to treatment since the pre-treatment tests are covered by the insurance. Discussions between data enumerator and hepatitis program managers at the South Sulawesi Provincial Health Office […]
Access to Treatment: Power of peers
A family member of a person living with hepatitis C approached Peduli Hati Bangsa during July, through social media channels to inquire about availability of medicines to treat hepatitis C in Hasan Sadikin Hospital, Bandung, West Java. Peduli Hati Team followed up with the hospital team and they confirmed that there has been a stock […]
Getting cured from hepatitis C
A person undergoing hepatitis C treatment in Fatmawati hospital approached Peduli Hati with concerns that she might not be able to access sofosbuvir/daclatasvir for the 6th month of treatment as there was stock out during March. She was also diagnosed with a cirrhotic liver and had obtained 5 months of medicines from the hospital. Action […]
Moving the National CLM agenda
Peduli Hati Bangsa was involved in the development of the Indonesian CLM Technical Guidelines, adapted from tools that are available now, in the second half of 2023. This is aimed at providing a standard tool for CLM implementors in the country. It is proposed to be published as CLM national guidelines in 2024.
Easing access to HIV treatment for differently abled
Data enumerator came across a visually challenged person living with HIV at Labuang Baji Regional Hospital, South Sulawesi, Indonesia while collecting data during July. The person was facing consistent difficulty in collecting the HIV medicines every month from the facility. Action taken: An agreement was reached with the manager at the facility that our data […]
Hepatitis C medicine stock-shortage resolved
During third week of October 2023 various call were received from the community regrading shortage of medicines (DAAs) used for treatment of hepatitis C in the Treatment Centre at Bishnupur district. Some patients coming to access medicine from Bishnupur district hospital were not given monthly doses of the medicines needed. Action taken: The State Nodal […]